Ira Pastor, ideaXme exponential health ambassador and founder of Bioquark, interviews Dr. David Fajgenbaum, Assistant Professor of Medicine in the Division of Translational Medicine & Human Genetics at the University of Pennsylvania, Associate Director, Patient Impact of the Penn Orphan Disease Center, Founding Director of the Castleman Disease Center, and Co-Founder & Executive Director of […]
Tag Archives: rare disease
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Sheefali Asija, award-winning artist and ideaXme humanism ambassador, interviews Patricia Weltin, founder of Beyond the Diagnosis, a nonprofit organization utilizing art and science to inspire research and innovative treatments for people living with rare and neglected diseases. Creating a Community After Patricia Weltin’s children were diagnosed with Hypermobile Ehlers-Danlos Syndrome, a disease affecting the connective […]
